The Lovell Foundation was
the idea of Garry Lovell,
a horticulturalist from Victoria, and his wife Mandy, inspired
by the experiences of Garry’s mother Janice. Janice came from a family where Younger Onset Dementia was prevalent.
She was diagnosed at the age
of fifty and soon required higher levels of support and care than could be provided at home.
Unfortunately for Janice, who was an active and sporting lady,
facilities could not support her well, with limited outdoor space, and limited activities that involved her favourite pursuits.
She was considerably younger than most of the other residents in the facilities, and she didn’t fit in well, having different interests to those around her. Because the homes had difficulty supporting her, she was moved from home to
home many times.
When Garry was diagnosed himself with the condition in his forties, he wanted to make
a difference. He knew that with better awareness about Younger Onset Dementia, would come better options for care, so
The Lovell Foundation was launched in 2009.
“Garry knew that with better awareness about Younger Onset Dementia, would come better options for care, so The Lovell Foundation was launched in 2009.”
Our dream is to see a better quality of life for younger people with dementia, who seek support from a system that is not always responsive to their needs. Younger people with dementia may require residential care services – these services are typically designed for people at an advanced age.
The Lovell Foundation hopes that by sharing our experiences, and joining our voices, we can improve the quality of care.
We believe in the importance of listening to and learning from people living with Younger Onset Dementia.
– People with Younger Onset Dementia can identify their needs, and describe the characteristics of a place where they and their families want to live when dementia becomes advanced. It is clear that what they are asking for, as close as is possible, is a home away from home.
We want to engage with residential care providers.
– People who are interested in responding to the unique needs of younger people with dementia in their care, and work together to find solutions.
- Continue to raise the profile of Younger Onset Dementia through advocacy including presentations, events, media articles, and other activities
- To highlight the journey and needs of those living with Younger Onset Dementia through sharing stories, information and ideas
- To raise awareness of the need for long-term residential support services for Younger Onset Dementia where few, if any options currently exist
- Administer the ‘Trevor Mast Research Scholarship’ to research training needs for staff working with people living with Younger Onset Dementia (whether at home, in respite care or residential facilities)
- Continue to consult with a range of organisations both in Australia and overseas to devise a good model for Younger Onset Dementia long-term residential care and community support
- Continue our fundraising efforts to assist with these plans
The Management Committee.
Our Management Committee is dedicated to raising awareness about
Younger Onset Dementia and its impact on families.
We believe that much more can be done in the long-term care sector
to better accommodate the needs of families and friends.
Mandy is a psychologist who has worked in a dementia-specific nursing home, adult mental health services, with victims of crime, in palliative care, and with those affected by bushfires in a private counselling practice in the Yarra Valley.
She has recently retired from work to love and care for her husband Garry who has Alzheimer’s disease.
She has served on the Alzheimer’s Australia Victoria Younger Onset Dementia Reference Group.
Mandy is dedicated to raising awareness about Younger Onset Dementia and its impact on families, believing that much more can be done in the long-term care sector to better accommodate families and friends.
Graeme is an engineer and has worked in a range of engineering/management fields in a variety of organisations during his career – both in the public service and private enterprise.
For the last ten years, he has worked as a private consultant, in various infrastructure-related fields. However, for the past few years, he has been the principal carer for his partner, Maxine.
Together with Maxine, Graeme has been active in advocating for improved recognition and services for people with dementia in the community – particularly those with Younger Onset Dementia.
Ineke grew up on a vineyard in the Grampians with her wine making family which included three sisters. She left the family home after finishing school to travel Europe and lived in the UK for five years.
She worked in public relations and sales before returning home to Australia and settling in Melbourne to join the wine industry and start a family.
Ineke’s father, Trevor Mast was diagnosed with Younger Onset Alzheimer’s disease when aged fifty-seven and moved to Melbourne to be closer to the family.
Trevor passed away in 2012 at the age of sixty-three. Ineke joined the Lovell Foundation shortly after and is passionate about creating better support for people living with Younger Onset Dementia and their families.
She still lives in Melbourne with her husband and two young children.
Bernie has been teaching at secondary schools for over forty years both at independent and government schools.
Eight of those years saw Bernie in the position of Deputy Head of Curriculum and Learning.
Bernie has been a long-standing member of the Younger Onset Dementia Reference Group at Alzheimer’s Australia Victoria.
Bernie’s late wife Cath was diagnosed with Frontotemporal dementia approximately eight years ago while in her late fifties.
Jack Sach operated an aged and disability services planning and service evaluation consultancy for twenty-one years.
During this time he contracted to the Commonwealth,
State and Local Governments, hospitals and not-for-profit sectors throughout Australia on over three hundred projects.
He later joined Alzheimer’s Australia Victoria for ten years as the General Manager
for Strategic Initiatives before retiring in late 2015.
Jack has particular interest in advocating for better support and care for people living
with Younger Onset Dementia
and is also committed to the development of effective dementia research to identify the causes, delay and treatment of Alzheimer’s disease and other dementias.
In addition to motherhood, Sandra Mast divided her working life between a teaching career and various roles in the family wine business in the Grampians region of Victoria including cellar door manager and hostess to the many wine industry visitors who visited the area.
Her late husband, Trevor, a wine show judge and manager/owner of their medium-sized business was a graduate of the Geisenheim Institute for winemaking and viticulture in Germany.
Trevor was diagnosed with Younger Onset Dementia in 2006 at the age of fifty-seven.
As a result, Sandra and Trevor moved to Melbourne to be closer to their daughters and grandchildren. They joined the Lovell Foundation soon afterwards, and, with the support of colleagues in the wine industry, helped to raise funds, some of which are now being used for the ‘Trevor Mast Research Scholarship.’
Sandra is passionate about the quality of care for those living with Younger Onset Dementia in residential facilities and hopes to see the provision of more suitable accommodation for younger people in the not-too-distant future.
Suzanne’s twenty-five plus-years experience in the
Arts industry began in communications.
More than twenty-one years ago Suzanne co-founded with her husband Russell, explosivemedia – Dynamic Event Management. She has since provided the company with a creative focus,directing event conception and creative programming.
Projects have included Melbourne’s New Year’s Eve and City of Melbourne’s ‘Summer Fun in the Parks/City,’Food and Wine festivals, Arts Centre Melbourne projects, Indigenous showcases and international ‘Sister City’ events and festivals.
Most recently Suzanne founded her own business SO Creative Projects.
Her cherished partner in life and work, Russell, was diagnosed two year’s ago in his late fifties with Posterior cortical atrophy a ‘visual’ variant of Alzheimer’s.
Suzanne wishes to support him and others with Younger Onset Dementia to access suitable services and facilities, which are in very short supply.